After using an at-home DNA test, you may decide to remove your genetic data for privacy reasons. Here’s what you need to know about privacy policies and how to delete your information from major companies.
Why Consider Deleting Your Genetic Data?
- Privacy Risks:
- Genetic data reveals personal health information, disease risks, and familial relationships.
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It could be misused by employers, insurers, or other entities despite protections like the Genetic Information Nondiscrimination Act (GINA).
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Third-Party Access:
- Many companies share or sell data for research or commercial use.
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Some companies store samples indefinitely, increasing the risk of breaches.
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Law Enforcement:
- Databases like GEDmatch have been used to help solve crimes, which may affect privacy for you and your relatives.
How to Delete Data From Major DNA Companies
1. 23andMe
- Delete Genetic Data:
- Go to Account Settings Choose "Delete Account and Personal Information."
- Destroy DNA Sample:
- If stored, change preferences in Account Settings. Samples are destroyed unless you opt for biobanking.
- Research Data:
- Withdraw consent for future research via Account Settings.
- Note: Data used in completed studies cannot be removed.
2. Ancestry
- Delete Genetic Data:
- Log in DNA Tab "Your DNA Results Summary" Settings "Delete Test Results."
- Deleting your account also deletes genetic data.
- Destroy DNA Sample:
- Request sample destruction through Ancestry’s Member Services.
- Research Data:
- Withdraw future research consent via Account Settings.
- Note: Data already used in research cannot be removed.
3. MyHeritage
- Delete Genetic Data:
- Go to Manage DNA Kits Select "Delete Data" or contact customer support.
- Destroy DNA Sample:
- Request destruction via Customer Support.
- Research Data:
- Change preferences in My DNA Preferences under Privacy Settings.
- Note: Research data already used cannot be retracted.
Tips for Deleting Genetic Data
Read Privacy Policies:
- Know what the company can do with your data, including sharing with third parties.
Be Aware of "De-Identification" Limits:
- Even anonymized data can sometimes be re-identified with additional details.
Consider External Sites:
- Be cautious about uploading DNA data to third-party platforms for further analysis. Check their privacy policies.
Know What Remains:
- Data used in completed research or stored under regulatory obligations might not be fully deletable.
Balancing Benefits and Risks
While DNA tests offer valuable insights and potential health benefits, understanding how your genetic data is handled and stored is critical. By staying informed and taking action, you can better protect your privacy while reaping the advantages of genetic testing.
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